Most people accept my disease and all its associated problems, while others have a harder time grasping the concept. Coming back to school after my initial diagnosis I had to inform all my teachers about my disease as well as new accommodations.

Going to the doctor so much, I tend to miss lots of school. I remember one time I had tons of doctor appointments in one week and found a mountain of schoolwork awaiting me when I got back to school. Overwhelmed, I tried my best to get all the work done. Most teachers were patient with me as they knew my scenario and knew I had many other classes. 

However, there was one teacher who had forgotten that I had a time-straining medical condition. Getting to class I remember her frustrated tone with me as she brought up all the work I had to do, and how I had not come in for advisory. In reality, I had so many other classes I had to also worry about. I just had not gotten around to getting her work done. I listened to her lecture and apologized and went about my day. But, at some point, I realized that I needed to maybe revisit the conversation about my medical condition with that teacher. I realized I have a valid Medical 504 and a lot on my plate.

Even though it was a scary conversation, later in the day I found that teacher and reminded her about my medical condition. I explained to her the overwhelming workload and stress put on by some teachers. To that she responded that she had simply forgotten about my condition and felt terribly sorry. 

Self advocacy during hard times is important as it helps build support and set boundaries for you to accomplish your goals. In this confidence can be found as you empower yourself to have difficult conversations. Not everyone always knows what we are going through, speaking out can help garner the support system you need.

Next week I will touch on dating with my disease. I can’t wait to continue to share my story with you! Remember our struggles don’t define us.