When changing treatment plans, my hospital made a backup of my old treatment on standby just in case the new medicine didn’t work for me. Many many weeks later,  the medication was never needed. However, my family paid for the medicine so at my last treatment they gave us the bottled-up medicine. 

At first, I thought it was a joke, but then they actually told us you gotta take it since you paid. They joked about me selling it on the black web, and I didn’t realize the prices they were saying were actually true. The cost of simply being able to function was shocking.

It made me realize how fortunate I am to have parents who provide for me and support me. I have found through my condition I am more and more grateful for things every day. Whether it’s my medication, going to school, or even being able to walk I find I never take anything for granted anymore. There is a great benefit to practicing gratitude. A newer thing I have started before I go to bed is writing down three things I am thankful for. 

Next week I will touch on how rare my condition is. I can’t wait to continue to share my story with you! Remember our struggles don’t define us.